State/National Organizations
This section accesses a multitude of State and National Organizations that provide information, support and research on a wide range of disabilities and medical conditions.
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Showing Results 101 - 150 of 266
Description: The PERT Program is a highly effective school-to-work transition initiative supported by the Virginia Department of Education and administered through the Virginia Department for Aging and Rehabilitative Services (DARS) at Wilson Workforce and Rehabilitation Center (WWRC). PERT Program services are provided on the WWRC Campus where students reside in a dormitory. The PERT Program assists students in their transition from high school to post secondary options by helping them answer these...
Description: AMC is proud to partner with the Autism Society to offer unique movie showings where we turn the lights up, and turn the sound down, so you can get up, dance, walk, shout or sing! Our Sensory Friendly Film program is available on the second and fourth Saturday (family-friendly) and Wednesday evenings (mature audiences) of every month. Please check your local theatre listings for specific showtimes, and don't forget to share your family fun with #AMCSensoryFriendly. AMC's partner for Sensory...
Description: The Virginia Family Special Education Connection Website provides Local Disability Services information for all of the Counties/Cities in the Commonwealth of Virginia. These services include: Arc (The Arc) Autism Spectrum Disorder Resources Brain Injury Services Care Connection for Children (Health Department Program) Centers for Independent Living Child Development Services Program - Clinics Child Find Community Services Board (CSB) Department for Aging and...
Description: Social Security Office Locator allows you to find the Social Security office located within your zip code. Social Security Online Services - Social Security is constantly expanding their online services to give you freedom and control when conducting business with Social Security. Today, you can apply for retirement, disability, and Medicare benefits online, check the status of an application or appeal, request a replacement Social Security card (in most areas), print a benefit verification...
Description: People with Special Health Care Needs includes: Care Connection for Children Bleeding Disorders Program Child Development Services Sickle Cell Programs Metabolic Formula and Food Program
Description: The University of Kansas Center for Research on Learning (KUCRL) is a multidisciplinary research team whose overarching goal is Creating Solutions to Educational Challenges. KUCRL is dedicated to development and research of educational programs and practices that improve outcomes for all learners, including those with learning differences or disabilities. Our recent research and development focuses on online learning for students with disabilities, personalized learning in blended...
Description: SLN is a national nonprofit whose mission is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
Description: AWAARE Collaboration is a working group of seven national non-profit autism organizations whose mission is to prevent autism-related wandering incidents and deaths. NAA (National Autism Association) has created three digital safety toolkits that can be downloaded: Caregiver Toolkit, First Responder Toolkit and Teacher Toolkit.
Description: The Faces and Facts of Disability - Social Security is with you throughout life’s journey, touching the lives of nearly every American, often during times of personal hardship, transition, and uncertainty. Our programs serve as vital financial protection for working men and women, children, the disabled, and the elderly. For over 60 years, our disability program has remained true to its original purpose of delivering economic security against the risk of a severe disability that prevents...
Description: Special Needs Parent Tool Kit Birth to 18 - The Office of Community Support for Military Families with Special Needs is pleased to provide the Department of Defense Special Needs Parent Tool Kit — Birth to 18. This tool kit provides information and resources that will help you improve your quality of life and teaches you how to advocate for your child with special needs. Each of the six modules addresses issues you are likely to encounter throughout your child’s life. Whether your...
Description: Prader-Willi Syndrome is a complex genetic disorder of the 15th chromosome; the most common known genetic cause of life-threatening obesity in children. PWSA | USA supports individuals diagnosed with Prader-Willi syndrome, their families, and care providers with critical information and resources. We educate medical providers, educators, and professional care givers about PWS and how to best support individuals with the syndrome. PWSA | USA seeks to support research projects with the potential...
Description: The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the success of children and youth with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, and helps professionals obtain conditions and resources necessary for effective professional practice. CEC is known as THE source for information, resources, and professional...
Description: AIR is one of the world's largest behavioral and social science research and evaluation organizations. Our overriding goal is to use the best science available to bring the most effective ideas and approaches to enhancing everyday life. For us, making the world a better place is not wishful thinking. It is the goal that drives us. Their vision is to: Inform improvements to education, health, workforce development, and related areas; Collaborate with organizations, policymakers, and practitioners...
Description: Through our Outreach Services department, VSDB serves children, families, and educators throughout the Commonwealth of Virginia. We are committed to serving the needs of all Virginia children who are deaf/hard of hearing, blind/visually impaired, or deaf blind, whether or not they are enrolled at VSDB. Therefore we also strive to help all educators in Virginia better meet the needs of these students. VSDB Outreach Services are funded through a grant from the Virginia Department of Education.
Description: MASI is a comprehensive, fee-based program that provides additional intensive support services to students on the Autism Spectrum beyond typical higher education accommodations. MASI uses a team-based approach to assist students in achieving their goals in college.
Description: Vision Statement: A life of possibilities for all Virginians Mission Statement: Supporting individuals by promoting recovery, self-determination, and wellness in all aspects of life
Description: The mission of National Council for the Social Studies is to advocate and build capacity for high-quality social studies by providing leadership, services, and support to educators. Social studies is the integrated study of the social sciences and humanities to promote civic competence. Within the school program, social studies provides coordinated, systematic study drawing upon such disciplines as anthropology, archaeology, economics, geography, history, law, philosophy,...
Description: The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential. They provide advocacy, research, education, direct tools, thoughtful awareness and hope.
Description: Family Voices is a national family-led organization promoting quality health care for all children and youth with special health care needs. Working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.
Description: At least 28 percent of students 12-18 are bullied at school. As much as 6 percent of students report having been threatened with harm. Maintaining a safe, nurturing school environment for students is any school leader’s top priority. These resources can help you combat bullying in your school.
Description: How is bullying defined? Does bullying happen more often than adults think? What if my child is the one bullying? How does bullying impact a students’ health? Here you will find the answers to these questions and many more, along with helpful information about cyberbullying, students with disabilities, and research.
Description: The National Association for the Education of Homeless Children and Youth (NAEHCY) is a national membership association dedicated to educational equity and excellence for children and youth experiencing homelessness. NAEHCY’s vision is that every child and youth experiencing homelessness is successful in school, from early childhood through higher education.
Description: Early Childhood Mental Health Virginia (ECMHVA) is a statewide initiative focused on the development, implementation and sustainability of a comprehensive early childhood system of care for infant and early childhood mental health. The Early Childhood Mental initiative collaborates with early childhood agencies and representation across the Commonwealth to identify opportunities to increase access to resources and services by researching and securing funding for a continuum of quality in...
Description: Disability Scoop is the nation’s premier source for developmental disability news. With daily coverage of autism, intellectual disability, cerebral palsy, Down syndrome and more, it offers timely and comprehensive information about issues that matter to the developmental disability community.
Description: Are you looking for information on a health condition or perhaps trying to find health services? There are lots of medical sites out there that explain conditions in terms you don’t need to be a doctor to understand. And there are sites that can help you locate healthcare services in your community.
Description: Welcome to the alphabet soup of special education! The disability community is full of acronyms that people constantly use in writing and in conversation, and it’s important to know what those acronyms stand for. Acronyms are used in order to abbreviate names or phrases. The CPIR is pleased to provide this list of special education and disability-related acronyms, and hope it helps our readers quickly connect with the meaning of pivotal acronyms in the field.
Description: 1. Value your child's questions. 2. Explore and find the answers together. 3. Give children time and space to explore. 4. Acceot that explorations are often messy. And more...
Description: When adults respond quickly and consistently to bullying behavior they send the message that it is not acceptable. Research shows this can stop bullying behavior over time. Parents, school staff, and other adults in the community can help kids prevent bullying by talking about it, building a safe school environment, and creating a community-wide bullying prevention strategy.
Description: Spina bifida is one of the most common birth defects in the United States, affecting some 1,500 babies each year. Spina bifida happens during the first month or so of pregnancy and means that the baby’s spine did not close completely. Damage to the nerves and the spinal cord may result. In general, there are three types of spina bifida. These are: Spina bifida occulta: In this mildest form of spina bifida, there’s a small defect or gap in one or more of the vertebrae (bones) of the...
Description: The first 3 years of life, when the brain is developing and maturing, is the most intensive period for acquiring speech and language skills. These skills develop best in a world that is rich with sounds, sights, and consistent exposure to the speech and language of others. There appear to be critical periods for speech and language development in infants and young children when the brain is best able to absorb language. If these critical periods are allowed to pass without exposure to language,...
Description: Latinx Resources - El programa de Alcance Latinx de PEATC se enfoca en brindar educación y recursos a nuestra población Hispana/Latinx en el estado de Virginia, completamente en español. El objetivo de este programa es difundir información en el idioma con el que las familias se sientan más cómodas, pero al mismo tiempo teniendo en cuenta su cultura y creencias. Al brindar nuestros servicios en español, PEATC asegura la inclusión...
Description: Key Facts about Tourette Syndrome: Tourette Syndrome (TS) is a neurodevelopmental disorder that becomes evident in early childhood or adolescence. It is part of the spectrum of Tic Disorders and is characterized by motor and vocal tics. Tourette Syndrome and other Tic Disorders are not rare. The current estimates are that 1 out of every 160 children between the ages of 5-17 in the United States has TS and that 1 out of every 100 children has TS or another Tic Disorder. Some Tic Disorders may be...
Description: The Library and Resource Center (LRC) is a component of the Department for the Blind and Vision Impaired (DBVI) from which two fundamental programs are administered. Library services are offered to persons who are print disabled. The Library and Resource Center service is provided to local school divisions to support education of visually impaired and blind children.
Description: AAIDD, (formerly AAMR -- American Association on Mental Retardation), is the oldest and largest interdisciplinary organization of professionals and others concerned about intellectual and developmental disabilities. We're tireless promoters of progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities.
Description: All the materials found on the CPIR Hub have been created and archived for Parent Centers around the country to help them provide support and services to the families they serve. The CPIR employs a user-centered process, gathering the perspectives of our experienced audience—Parent Center staff members and other experts—every step of the way, to create products and services that increase Parent Centers’ knowledge and capacity in specific domains.
Description: Looking for information, resources, and technical assistance (TA) to help you and others support children with disabilities in their least restrictive environment in school? Here’s a starter list of places to look online. These will surely lead you to more.
Description: The Individuals with Disabilities Education Act (IDEA) lists five special factors that the IEP team must consider in the development, review, and revision of each child’s IEP. The discussion below will highlight the importance of these special factors in the education of children with disabilities and the need for individualized consideration of these factors in IEP development and revision. The special factors are: Behavior, Limited English proficiency, Blindness or visual impairment,...
Description: The central “Hub” of information and products created for the network of Parent Centers serving families of children with disabilities All the materials found on the CPIR Hub have been created and archived for Parent Centers around the country to help them provide support and services to the families they serve. The CPIR employs a user-centered process, gathering the perspectives of our experienced audience—Parent Center staff members and other...
Description: VCPD members collaborate to provide diverse leadership to prepare early childhood personnel to support all children (prenatal to age five) and their families in home, school, and community settings. Our vision is for Virginia to have a high-quality, coordinated, cross-sector early childhood professional development system.
Description: Toddlers have a reputation for being unreasonable. This is because they have strong feelings and are not yet able to stop their impulses. Their big emotions lead them to behave in aggressive ways: screaming, hitting, throwing things, and more. This article provides some ways to manage these tough behaviors and some things that won't help.
Description: CLASP is a national, nonpartisan, anti-poverty nonprofit advancing policy solutions for low-income people. We develop practical yet visionary strategies for reducing poverty, promoting economic opportunity, and addressing barriers faced by people of color. With over 50 years' experience at the federal, state, and local levels, we're fighting back in today's threatening political climate while advancing our vision for the future.
Description: The National Down Syndrome Congress (NDSC) is a not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information about Down syndrome, from the moment of a prenatal diagnosis through adulthood. The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families...
Description: The Waisman Center is dedicated to advancing knowledge about human development, developmental disabilities, and neurodegenerative diseases through: Research spanning the biological, behavioral and social sciences Training for students and post-doctoral fellows, providers and the community Services for individuals with developmental disabilities and their families Outreach to the community.
Description: Founded in 1990 by Don Meyer, the Sibling Support Project is a national program dedicated to the life-long and ever-changing concerns of millions of siblings of people with health, developmental, and mental health needs. Our initiatives include: Sibshops. Lively events for school-age siblings of kids with developmental and health concerns. Hundreds of Sibshops exist across the US & around the world. Find a sibshop near you Watch Video: Sibling Support Project and Introduction to Sibshops...
Description: This booklet is for the parents, caregivers or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood (prior to age 22) and who might be entitled to Social Security Disability Insurance (SSDI) benefits. (We call this SSDI benefit a “child’s” benefit because it is paid on a parent’s Social Security earnings record.)
Description: Traumatic Brain Injury & Concussion - A traumatic brain injury, or TBI, is an injury that affects how the brain works. TBI is a major cause of death and disability in the United States. Anyone can experience a TBI, but data suggest that some groups are at greater risk for getting a TBI or having worse health outcomes after the injury. Find the following information: About Mild TBI and Concussion About Moderate and Severe TBI Where to Get Help TBI Facts TBI Data
Description: The Safe Concussion Outcome Recovery & Education (SCORE) Program at Children’s National Hospital evaluates, monitors and manages the care of children and adolescents with concussions (known as mild traumatic brain injury or TBI). The program consults with physicians regionally and nationally, as well as scholastic and youth recreational sports programs in which children are vulnerable to injury. Clinicians in the SCORE program have a specific expertise in managing academic...
Description: Members serving in the AmeriCorps VISTA program serve full time for one-year terms. They build capacity in nonprofit organizations and public agencies to help them more effectively generate the commitment of private sector resources, encourage volunteer service at the local level, and empower individuals and communities.
Description: The Mid-Atlantic ADA Center provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of businesses, government entities, organizations, and individuals in the Mid-Atlantic Region (DC, DE, MD, PA, VA, and WV).
Description: For most students entering LDI, educational and employment success have been elusive. Their educational and employment difficulties have adversely affected how many view themselves and their opportunities for the future. Since 1982, LDI’s community-based and results-oriented special education programs in a residential setting have provided a supportive environment for people to grow and thrive, achieving success in obtaining competitive employment, living on their own, pursuing higher...