This section accesses a multitude of State and National Organizations that provide information, support and research on a wide range of disabilities and medical conditions.Skip to search results
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Description: People with Special Health Care Needs includes: Medical Neighborhood Care Connection for Children Bleeding Disorders Program Child Development Services Sickle Cell Programs Metabolic Formula and Food Program
Description: The Center for Research on Learning encompasses six divisions, each with a slightly different research emphasis. We study problems in education and work to place solutions that make a difference into the hands of educators, learners, employers, and policy makers.
Description: The mission of the Sibling Leadership Network is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
Description: Since 1996, SibNet (for adult brothers and sisters) has connected tens of thousands of sisters and brothers from around the globe with their peers, providing members with validation, information, and advice. Like the greater sibling community, SibNet has a diverse membership: We come from all economic, religious, and cultural backgrounds. We have sibs who have autism, intellectual disabilities, cerebral palsy, Down syndrome, spina bifida, fragile X, and other disabilities. Some of us...
Description: Sibshops provide young brothers and sisters (8-13 years of age) peer support and information in a lively, recreational setting. For the adults who run them and for the agencies that sponsor them, Sibshops are evidence of their loving concern for the family member who will have the longest-lasting relationship with a person who has a disability.
Description: SibTeen is a Facebook group where teenage sibs of people with disabilities can connect with others who get it. It's a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand! Like SibNet and Sib20, SibTeen is a “closed” Facebook group. This means that others can see that you belong to SibTeen, but they can't see what you've posted. Only other SibTeen members can see what you’ve posted to...
Description: Sib20 is a Facebook group where twenty-something sibs of people with disabilities connect with others who "get it." It's sibling support from a young adult perspective. Sib20 is also a community—a remarkably thoughtful, nonjudgmental community of sisters and brothers who share concerns, challenges, insights, and joys that only other sibs are likely to understand. And members share information about services, resources, and strategies that help other members advocate for their brothers and...
Description: Your family needs to plan for how your sibling will live in the future, but starting the conversation can be very difficult. Here are some tips to prepare you to start talking with your family. What do you want to say to your parents and sibling? Think about what you want to tell your family about the importance of planning for the future. What role do you foresee playing in your sibling’s life in the future? What other obligations do you have in your life that you need to balance? What...
Description: The Autism Wandering Awareness Alerts Response and Education (AWAARE) Collaboration is a working group of six national non-profit autism organizations whose mission is to prevent autism-related wandering incidents and deaths. NAA (National Autism Association) has created two digital safety toolkits that can be downloaded here:Caregiver Toolkit and First Responder Toolkit.
Description: Finding and safely recovering a missing child with autism presents unique and difficult challenges for families, law enforcement, first responders and search teams. The National Center for Missing & Exploited Children has special search protocols and checklists to help first responders.
Description: Social Security touches the lives of nearly every American, often during times of personal hardship, transition, and uncertainty. Our programs serve as vital financial protection for working men and women, children, the disabled, and the elderly. We administer the largest disability program in the nation. Unfortunately, there are some common misconceptions about our program. We want to ensure that the American public understands this important program and has a clear picture of the individuals...
Description: The Office of Community Support for Military Families with Special Needs is pleased to provide the Department of Defense Special Needs Parent Tool Kit — Birth to 18. This tool kit provides information and resources that will help you improve your quality of life and teaches you how to advocate for your child with special needs. Each of the six modules addresses issues you are likely to encounter throughout your child’s life. Whether your child has been recently diagnosed with a...
Description: This is a listing of independent organizations who provide a variety of direct supports and services to individuals with disabilities seeking employment or working.
Description: Using Virginia Workforce Centers or One-Stops, Virginia’s workforce can find the resources it needs to search for jobs and improve its professional skills. With about 70 centers located across Virginia, one is close by and ready to assist you with career services. Centers are available to anyone in the community seeking employment, including individuals with ASD and other disabilities and provide an array of services including vocational training and job placement services.
Description: Reading Rockets is a national multimedia project that offers a wealth of research-based reading strategies, lessons, and activities designed to help young children learn how to read and read better. Our reading resources assist parents, teachers, and other educators in helping struggling readers build fluency, vocabulary, and comprehension skills.
Description: Prader-Willi Syndrome is a complex genetic disorder of the 15th chromosome; the most common known genetic cause of life-threatening obesity in children.
Description: CEC is the voice and vision of special education and the premier association for special education professionals.
Description: CEC's (Council for Exceptional Children) divisions individually explore a single facet of special education in thoughtful detail, bringing together professionals to exchange ideas, stimulate research, and promote expertise in key areas of each fast-growing field. These include: Council of Administrators of Special Education (CASE), Council for Children with Behavioral Disorders (CCBD), Division for Research (CEC-DR), CEC Pioneers Division (CEC-PD), Council for Educational Diagnostic Services...
Description: The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field.
Description: AIR is one of the world's largest behavioral and social science research and evaluation organizations. Our overriding goal is to use the best science available to bring the most effective ideas and approaches to enhancing everyday life. For us, making the world a better place is not wishful thinking. It is the goal that drives us.
Description: VSDB has expanded its webpages to include links to great resources and tools that can be used by families of and professionals serving children from birth to 22 years who are deaf/hard of hearing, blind/visually impaired, or deaf-blind.
Description: The Academy has over 75,000 members — registered dietitian nutritionists, dietetic technicians, registered, and other dietetics professionals holding undergraduate and advanced degrees in nutrition and dietetics, and students — and is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy. This website has a section "For Kids," "For Parents," "For Men," "For Women," and "For Seniors." (National Organization)
Description: This podcast highlights the evidence that supports the link between healthy eating and improved academic achievement. It also identifies a few actions to support a healthy school nutrition environment to improve academic achievement. (CDC - Centers for Disease Control and Prevention)
Description: The Mason Autism Support Initiative offers individualized, comprehensive social and academic supports to motivated Mason students with autism spectrum disorder in order to guide them through the transition into university life, and assist them in building skills necessary for success in the university environment and beyond. We encourage development of self-advocacy and college-level independent living skills by providing individual and group support within a collaborative model. Applications...
Description: The goal of the Curb Cuts to the Middle Class Initiative – a federal cross agency initiative – is to coordinate and leverage existing resources to increase employment opportunities for people with disabilities. This resource guide is an example of federal agencies working together to ensure employers have the tools and resources they need to recruit, hire, retain, and promote people with disabilities.
Description: Founded in 2009, the National UDL Center supports the effective implementation of UDL by connecting stakeholders in the field and providing resources and information UDL Basics, Advocacy, Implementation, Research, Community, and Resources.
Description: Reading Makes Cent$ is a financial literacy program for Virginia students grades K–3.
Description: Social studies educators teach students the content knowledge, intellectual skills, and civic values necessary for fulfilling the duties of citizenship in a participatory democracy. The mission of National Council for the Social Studies is to provide leadership, service, and support for all social studies educators.
Description: The Center on RTI is a national leader in supporting the successful implementation and scale-up of RTI and its components. It continues the work of the National Center on Response to Intervention (NCRTI), which AIR ran from 2007-2012 with a grant from the Office of Special Education Programs. When the Center’s federal funding ended in 2012, AIR took over upkeep and maintenance of the Center’s website and products and continues to provide support for states, districts, and schools...
Description: The National Autism Association is a parent-run 501(c)3 nonprofit organization. Founded in 2003, NAA is a parent-run advocacy organization and the leading voice on urgent issues related to severe autism, regressive autism, autism safety, autism abuse, and crisis prevention.
Description: Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. Working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.
Description: This site includes: Bullying Info and Facts, Educator Toolkits and Activities, Free Bookmarks, Information Handouts, Book Club and Students with Disabilities.
Description: The National Federation of the Blind has reached an agreement with the U.S. Department of Education that will make student loan information accessible to Americans who are blind. The agreement commits the Department of Education to make websites, forms, and documents related to the department's Direct Loan program equally accessible to applicants and borrowers who are blind.
Description: Safe Routes to School (SRTS) programs are improving children’s lives throughout the United States—making it safer to walk and bicycle to school, and encouraging a generation of young people to consider healthy, environmentally friendly transportation options.
Description: Over the past 19 years, Prudential Spirit of Community Awards have been given to more than 2,625 middle and high school students across Virginia for helping the less fortunate, promoting health and safety, protecting the environment, and serving their communities through many other volunteer activities. These awards, presented nationwide by Prudential Financial, Inc., in partnership with the National Association of Secondary School Principals (NASSP), honor outstanding community service by young...
Description: The National Association for the Education of Homeless Children and Youth (NAEHCY) is the voice and social conscience for the education of children and youth experiencing homelessness. NAEHCY accomplishes this through advocacy, partnerships, and education.
Description: States and local governments can play a significant role in advancing the employment of individuals with disabilities through their own hiring activities. (EARN- Employer Assistance and Resource Network)
Description: This site provides resources, training, and links to Infant Mental Health endorsement. The goal of Earch Childhood Mental Health of Virginia is to develop of a comprehensive system of care for infant and child mental health serving children birth through age eight and their families/caregivers, which: Engages parents as partners; Provides high quality supports and services to families; Is grounded in developmental knowledge; Includes family and child centered practices and policy & cultural...
Description: "Student Involvement in the IEP" features two evidence based strategies to involve students in the IEP process. This fact sheet was developed as a collaborative effort between the Division on Career Development and Transition (DCDT) and the National Secondary Transition Technical Assistance Center (NSTTAC).
Description: Disability Scoop is the nation’s premier source for developmental disability news. With daily coverage of autism, intellectual disability, cerebral palsy, Down syndrome and more, it offers timely and comprehensive information about issues that matter to the developmental disability community.
Description: Individuals with disabilities are a vital and dynamic part of our Nation, and their contributions have impacted countless lives. People with disabilities bring immeasurable value to our workplaces, and we will continue to address the challenges to employment that must be overcome.
Description: Are you looking for information on a health condition or perhaps trying to find health services? There are lots of medical sites out there that explain conditions in terms you don’t need to be a doctor to understand. And there are sites that can help you locate healthcare services in your community.
Description: Welcome to the alphabet soup of special education! The disability community is full of acronyms that people constantly use in writing and in conversation, and it’s important to know what those acronyms stand for. Acronyms are used in order to abbreviate names or phrases. The CPIR is pleased to provide this list of special education and disability-related acronyms, and hope it helps our readers quickly connect with the meaning of pivotal acronyms in the field.
Description: Once a student with a disability leaves high school, other agencies are available to assist with putting the individual in contact with helpful resources. Table of Contents Employment Postsecondary Education Recreation Independent Living Assistive Technology Disability Living Online
Description: Use this checklist to monitor students who come to your office with a head injury. Students should be monitored for a minimum of 30 minutes. Check for signs or symptoms when the student first arrives at your office, fifteen minutes later, and at the end of 30 minutes. Students who experience one or more of the signs or symptoms of concussion after a bump, blow, or jolt to the head should be referred to a health care professional with experience in evaluating for concussion. For those instances...
Description: Supports the national dialogue to build awareness of mental health problems in communities. Presents data and other facts about mental illness in the U.S. to help educate and inform communities and start a conversation about mental illness. (The Information Graphic Reference List is located at http://store.samhsa.gov/shin/content/SMA13-4725/SMA13-4725_Reference.pdf.) (SAMHSA- Substance Abuse & Mental Health Services Administration)
Description: Apoya el diálogo nacional para crear conciencia acerca de los problemas de salud mental en las comunidades. Presenta datos y otra información sobre la enfermedad mental en los Estados Unidos para ayudar a educar e informar a las comunidades e iniciar un diálogo acerca de la enfermedad mental. (Información gráfica- Lista de referencia- http://store.samhsa.gov/shin/content//SMA13-4725SPAN/InformationGraphicReferenceListSpanish.pdf) (SAMHSA- Substance Abuse & Mental Health Services Administration)
Description: Sleep affects how children feel and function. By helping your child to get the recommended amount of sleep, you can improve your child's health, psychological well-being , and safety. Sleep is key to your child's growth and development as well as his/her ability to learn. (Virginia Academy of Sleep Medicine)
Description: Welcome to Sleep Education, a comprehensive educational resource for teachers and administrators! The American Academy of Sleep Medicine has developed lessons and activities to generate interest in the study of sleep medicine and to raise awareness of sleep disorders. Sleep is important for maintaining a healthy lifestyle and impacts our ability to perform in many aspects of life. (American Academy of Sleep Medicine)
Description: This includes 10 tips for parents to support their child's science learning.